Ingrid Grenar
Pharmac announce they will fund TRIKAFTA from April 2023
Pharmac announce they are to fund Trikafta in New Zealand for people with Cystic Fibrosis from April 2023.
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Ingrid Grenar
- Nov 28
- 1 min
WTCF! nominated for NZ Podcast Award 2022
What the CF! A Cystic Fibrosis Podcast is nominated for Best Family Podcast as the NZ Podcast Awards
Ingrid Grenar
- Sep 6
- 1 min
Episode 11: NEVER BETTER
In this episode, Ian and I review the brilliant film Never Better and chat with its writer-director Julianne Fox. Julianne, who has CF...
Ingrid Grenar
- Sep 5
- 2 min
Never Better is a witty must-see Covid-19 time capsule with a CF spin
We review Never Better by Julianne Fox.
Ingrid Grenar
- Aug 1
- 1 min
Episode 10: CF TODDLER
In this episode, Ian and I get to grips with life with a toddler with Cystic Fibrosis.
Ingrid Grenar
- Jul 12
- 6 min
‘People Say Really Stupid Sh-t To You When Your Child Has Been Diagnosed With Cystic Fibrosis’
This article was originally published on Capsule and reposted here with permission. When Ingrid Grenar founded ‘What The CF! A Cystic...
Ingrid Grenar
- May 18
- 1 min
Episode 9: TRANSPLANT
Lizzie McKay (Cystic Fibrosis NZ) shares her journey with Cystic Fibrosis and shares very candidly her journey to getting a lung transplant
Ingrid Grenar
- Apr 19
- 1 min
Episode 8: KALYDECO
Chris Macleod is a Candian with CF who was one of Canada's first patients on Kalydeco ten years ago. He’s now 52 and has advocated for CF ov
Ingrid Grenar
- Mar 24
- 1 min
Episode 7: TRIKAFTA
Welcome to Season 2 or What the CF! We're so happy to be back and ready to share lots of CF stories about treatment with you. If you're...
Ingrid Grenar
- Mar 17
- 2 min
A letter to Rt Hon Jacinda Ardern - I want hope for my son with Cystic Fibrosis
My name is Ingrid and I am the mother of a two-and-a-half-year-old with Cystic Fibrosis (see the cutie below). I also host a podcast...
Ingrid Grenar
- Sep 23, 2021
- 1 min
Interview on Magic Talk Radio
Magic Talk Interview with Carly Flynn 18th Sept 2021 chatting about life as a mum of a PWCF, Sweatember and Trikafta.
Ingrid Grenar
- Sep 16, 2021
- 1 min
The AM Show
The podcast gets a mention on the AM Show Good News segment, 9th September 2021.
Ingrid Grenar
- May 22, 2021
- 2 min
Andrew Little MP owes us an apology
The Cystic Fibrosis community is part of the 100k people that submitted a petition to parliament to increase Pharmac funding. We are...
Ingrid Grenar
- May 3, 2021
- 6 min
A message from a listener
The first series of What The CF! A Cystic Fibrosis Podcast has been an amazing and emotionally exhausting project and I don’t regret it...
Ingrid Grenar
- Apr 26, 2021
- 2 min
Episode 6: BOOK
Ingrid chats to Eilís Moroney, the author of 'Our Baby Has 65 Roses' and mum of a little person with CF - two-year-old AibhÍn, about...
Ingrid Grenar
- Apr 13, 2021
- 2 min
Episode 5: Dads
Eddie, Henry and David are all parents of little CFers. Ian chats to these dads about diagnosis, telling friends and family and what NOT to
Ingrid Grenar
- Mar 30, 2021
- 1 min
Episode 4: Genetics and Cystic Fibrosis with Kelly Sullivan Genetic Counsellor
Kelly explains what causes CF, what happens in your genetic counsellor meeting, and the options for couples wanting more children.
Ingrid Grenar
- Mar 16, 2021
- 2 min
Episode 3: Mums
Sophie, Kayla and Jessica are all mums of little CFers born during the pandemic. We chat about Cystic Fibrosis and telling family.
Ingrid Grenar
- Mar 2, 2021
- 2 min
Episode 2: CFNZ Fieldworkers
Ingrid chats to Sue Lovelock, Southern Fieldworker for Cystic Fibrosis New Zealand. Sue has worked as a fieldworker for 14 years and...
Ingrid Grenar
- Feb 16, 2021
- 2 min
Episode 1. Diagnosis
We discuss the journey to diagnosis for our son Orson at six months old. From pregnancy and birth, tests, diagnosis and processing the...