LET'S CHAT ABOUT....
What The CF! A Cystic Fibrosis Podcast launched in early 2021 and features conversations with Cystic Fibrosis medical experts, CFNZ, Genetic Counselling, and covering treatments like Trikafta, lung transplants and more. We're proud to have the support of CFNZ as we navigate this journey.
DIAGNOSIS & LIFE WITH CF
Childhood, childcare & education
Gene mutations - discovery
CF and life milestones
TREATMENTS & HEALTH
Gene mutation and health
New advances in treatment
CF hospital team in NZ
When our son was diagnosed with Cystic Fibrosis at six months old we were shocked and devastated. The road to diagnosis took several painful weeks. What started with kisses on salty skin soon became a persistent cough prompting many GP visits and eventually an X-Ray - the results of which opened the gates to the possibility of CF.
From the first moment seeing his foggy little lungs, we knew this was gonna be a rollercoaster and we weren't wrong. Only a week after diagnosis we were chucked into the COVID lockdown left to digest this huge news within our wee family. The overwhelm was real, and although the team at the hospital were amazing, it was the online community of CFers and their families where we found an abundance of warmth and understanding.
What the CF! was born out of a curiosity to learn more about this disease, support others, tell stories and share experiences while we navigate our own CF journey.
What the CF! A Cystic Fibrosis Podcast will talk openly and honestly about Cystic Fibrosis. We want to support individuals and families by providing the answers to their questions in a clear, correct but (hopefully) entertaining way while increasing both the value of our community and the awareness of CF within Aotearoa New Zealand and beyond.
You can now support us through buymeacoffee.com - a website that allows people to donate money to content creators to support their work, with amounts starting at the price of a coffee.
The money donated helps us to produce this podcast, tell more stories and get them to the people that need to hear them.
10% of all donations to WTCF! go to CFNZ.