LET'S CHAT ABOUT....
DIAGNOSIS & LIFE WITH CF
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Our story
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Childhood, childcare & education
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Gene mutations - discovery
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Diagnosis journey
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CF and life milestones
TREATMENTS & HEALTH
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Medication
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Gene mutation and health
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Fitness
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New advances in treatment
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Future prognosis
EXPERTS
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CF hospital team in NZ
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Australian community
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International specialists
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CFNZ
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International organisations
LAUNCHING 2021
Series one of the podcast is launching early 2021 and will feature conversations with Cystic Fibrosis medical experts, CFNZ, Genetic Counselling, and more.
OUR STORY
When our son was diagnosed with Cystic Fibrosis at six months old we were shocked and devastated. The road to diagnosis took several painful weeks. What started with kisses on salty skin soon became a persistent cough prompting many GP visits and eventually an X-Ray - the results of which opened the gates to the possibility of CF.
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From the first moment seeing his foggy little lungs, we knew this was gonna be a rollercoaster and we weren't wrong. Only a week after diagnosis we were chucked into the COVID lockdown left to digest this huge news within our wee family. The overwhelm was real, and although the team at the hospital were amazing, it was the online community of CFers and their families where we found an abundance of warmth and understanding.
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What the CF! was born out of a curiosity to learn more about this disease, support others, tell stories and share experiences while we navigate our own CF journey.
