Listen. Learn. Share.
Our journey with Cystic Fibrosis, one breath at a time.
Cystic Fibrosis stories to listen, learn and share
Symptoms to diagnosis
Genes and genes
When our son was diagnosed with Cystic Fibrosis at six months old we were totally in shock. How could we not know we were carriers? How did it get missed on the heel prick test? What will his life be like? What will all our lives be like? The amazing team at the hospital were great but it was the online community where we found an abundance of warmth and honesty minus the medical jargon. With careers in journalism, marketing and broadcasting, we wanted to galvanise this amazing community and provide our family's take on the impact of a chronic illness diagnosis. What the CF? was born out of a curiosity to learn more, support others and share our experiences during our CF journey.
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